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97 days. No days off. No breaks. No shift changes. Just a mother fighting for her daughter. My sister has been caring for her 13-year-old daughter, Jaya, completely on her own since she came home from the hospital after being hospitalized for over a year following a spinal stroke that left her paralyzed. For 97 days, she has provided care 24 hours a day, 7 days a week. Their Medicaid approval took 104 days instead of the expected 45. During that time, there was no nursing care, no income, and no way for her to return to work because Jaya requires constant care. Even now that Medicaid has finally been approved, they are still waiting for nursing services to be authorized. That delay has pushed them to the edge. Jaya has been unable to restart many of her therapies or see specialists because they couldn’t even get appointments without insurance. Meanwhile, my sister has been trying to juggle: • Caring for Jaya around the clock, including overnight catheterizations. • Raising her son